Support our Nation today - please donate here
Sport

Rob McElhenney and Ryan Reynolds donate thousands to help little boy

09 Feb 2024 4 minute read
Rob and Ryan and Louis

Rob McElhenney and Ryan Reynolds have once again demonstrated their benevolence when it comes to charitable causes, by donating £10,000 for a fundraiser to help a young fan.

Four-year-old Louis was born with a rare genetic condition – TUBA1A. He has epilepsy and cerebral palsy, and his home needs to be adapted to cater for his specific needs.

His family have launched a fundraiser, with a £40,000 target which will cover the cost of adapting the home to allow Louis to live the life he needs.

Louis enjoys being taken to watch Wrexham play by his brother Teddy, and the Wrexham co-owners have donated a hugely generous £10,000 to the fundraiser. They left a message on the donation page which read: ‘Up the town, young man!’

So far almost £17,000 of the £40,000 total has been reached – including a £2,500 donation from Wrexham Police FC. In a message posted to their donation page Louis’ family have outlined why their little boy is in need of urgent help.

They wrote: “Our 4, nearly 5 year old son, Louis, was born with a rare genetic condition – TUBA1A. He has epilepsy, cerebral palsy and a naughty sense of humour! He suffers with painful leg spasms and has very limited mobility. Caring for Louis as he continues to grow, is becoming more and more challenging for us as parents. The home we have and love, CAN be adapted so Lou can move and roll around independently. And so, us as his parents, can meet his everyday needs.

 ”My family have explored all options available to us including moving house. Moving house moves the problem and there are no ready-made, disabled friendly, affordable homes. We urgently need help to make adaptations to meet Louis’s needs in the house we want to remain in.

“Sadly, the local authority has rejected funding due the costs of the project exceeding the statutory limit offered by Welsh government. This has devastated our family. Initial plans began in 2021 and we have waited and waited, hoping, and expecting this to be approved. We are left with no other options other than to either fundraise or borrow money.

“Our home is becoming more and more unsuitable without being adapted. We cannot borrow the amount of money needed so we ask for your help to support Just4Children. Currently, the need for constant support in the home, has a detrimental effect on Louis’s happiness; he is frustrated by his dependence on others; he can not access his bedroom, move around, and play like his brother and friends. By helping fund adaptations, you are helping Louis stay in a safe and happy home with our family.”

Louis

The family also listed what Louis needs:

A bedroom on the ground floor which is wheelchair accessible, has enough space for independent play and for us as parents and his carers, to provide care;

A ground floor wet room to support him receive intimate care and eventually independent self-care in dignity;

Ease of access around the home to his own space and wet room by widening doorways;

Permanent and independent access to the home and garden;

Space for his standing frame, wheelchair, hoists, changing tables and physio equipment;

Ability to practise using his walker in accessible space at home and in the garden with a hope that one day he will be able to take his first unaided steps.

The family added: “Louis received his first self-propelling wheelchair in the summer 2023. He instantly got the hang of it – moving independently and loving the opportunities he now has. His school has the accessible spaces for him to be independent. He deserves the same independence at home. The ability to access your home, bathroom, bedroom and the outdoors should not be a privilege but a basic right regardless of affordability and government funding.

“ Our family will be incredibly thankful for any help you can provide. We just want to stay in our forever home with our beautiful boy.”

You can donate to Louis’ fund HERE


Support our Nation today

For the price of a cup of coffee a month you can help us create an independent, not-for-profit, national news service for the people of Wales, by the people of Wales.

Subscribe
Notify of
guest
0 Comments
Inline Feedbacks
View all comments

Our Supporters

All information provided to Nation.Cymru will be handled sensitively and within the boundaries of the Data Protection Act 2018.